Monday, October 24, 2016

Update thus far...and a few more things!!!

Well, I started a FB post but got kicked out, so I'm doing a blog post instead!  It's been a while, so I thought I would update. Oh, where to even begin....

First off, the beginning of October I was admitted to Blodgett hospital for treatment in efforts to break the migraine cycle and was there for 9 days  My Neurologist had done it before but not here.  And I was the lucky one to be the first to go through it.  Unfortunately, it was not fun at all. I was loaded up on tons of things that made me have some pretty awful, scary side effects.And to top it all off, it did nothing for my pain!!! :(

There is 1 entire day that I don't even remember anything, which is a little unsettling for me.  But anyway...according to my mom...I had severe Hallucinations,to the point that they were considering putting me in a drug induced coma, because apparently it took multiple people to hold me down.  They said that was a side effect from one of the many, many meds I was getting.  I had no clue what the potential side effects might have on me long term. I couldn't put words together, I was hearing and seeing things that weren't there.  Then absolutely horrific one I had was that my brother Kyle had been killed in a horrible accident and I wanted my parents to come and tell me.  My doctor came in to do rounds and saw how upset I was and I told him what I thought to be true, he was crying with me!!!  He then stepped out to call my mom of the validity of the story and she said, no he's fine.  My doctor came back to tell me, but I had my self so worked up and it was just awful....I'll spare you more details.  I feared that I'd never be able to watch Ian or Annalise again.  That my parents wouldn't be able to care for me and I'd end up in a care facility (yes, it was that bad!!!).  I could give example after example of how awful it was and then through it all it didn't do any thing for my pain. I was frustrated, but more than anything, I feared what my life would be like when I got out of the hospital?  Would God restore everything?  Trust me, it was a very real battle inside.

It was probably one of the worse experiences I've been through in life, but I had to give it a try.  So now, I ask you to prayer even harder and ask God to intervene and work a miracle, or send the right doctors to cross my path!!!  I can tell you that the physical pain definitely has changed my life, but I'm also more thankful for the little things in life and giving God all the glory & praise!!!  I know He has a plan, I pray daily that I'm walking the way He would want me to walk.   Having faith in Him and leaning into Him through this process!!!  Trusting Him...even on the days when I'm in extreme pain.  I know that God loves me and I am His child.  He knows my every need, He knows my pain....that's where my faith comes into play...I have to let go and let God!!!!

One more thing....below is a picture of myself, my dad and his 2 parents, so my grandparents who are both in Heaven.  My grandfather had 1 sister, Aunt Barb (so she's a Great Aunt to me, technically) is so sweet and her husband has not been in good health for quite some time.  She was caring for him at home, but it became too much, so he went into a home.  I don't know exactly how long he's been there, but he has been getting worse since  being there.  Long story short, he passed away last night.  Fortunately, for Aunt Barb she has their 2 sons that live right near her, 1 is actually right across the street, so  they'll be around to help her out.  But it's still a loss and an empty hole in the lives of those left behind.  I know this, because I can relate.  All 4 of my grandparents are in Heaven....what I wouldn't give for one last hug or phone call or anything!  My prayer for all of them is that God would fill them with the peace that only He can give.

So my 2nd cousin Kandice, must have been going through pics with the family & comes across this picture and she sent it to me.


I can tell by the picture that this must have been around one of the times that Grandma was doing Chemo based on how her hair looks (either way, she's beautiful and glowing!!!).  But the smiles on both of their faces is priceless.  I so wasn't expecting to see this and I was immediately moved to tears.  My dear Grandma has been in Heaven for 18 years.  It's hard to believe that she's missed nearly half of my life.  And yet it seems like just yesterday that I remember walking home (to their house) from church.  I'm so thankful for the memories I have of her.  I miss her dearly...I always thought about the milestones in my life that she would miss...my high school graduation, talking to her about dating, my wedding (which I clearly have nothing to brag about in that department), etc....  I was the only granddaughter on both sides, so I fully expected to have those moments with both of my grandmothers but God had other plans.

If you are my age (for those of you that don't know my age, you'll have to guess...lol), if you still have living grandparents....CHERISH that time, make memories!!!!  Be thankful they are still here!!!!  Another thing that hit me really hard was in the hospital when I thought Kyle had been killed in this accident, my first thought was "what was the last thing I said to him".  I am telling you friends, this was/is so very real in my memory!!! Don't take your family, your relationships for granted, you never know when it might be the last time you see them.  Think about how you treat them.  Do you treat them with love and respect?  Or are you continuously harping on them about something?  It can be a spouse, a child, a friend, a parent.  This applies to so many different types of relationships.  This world has created an environment of us needing to be on the go all the time, and we are running here, there and every where.  Slow down.  We have no promise of tomorrow.  You may think I'm on my soapbox, but I'm telling you this is true.  It's something to think about.  I can tell you that week in the hospital gave me a new perspective on life and how I approach my relationships and those people in my life.  What I value and what I want to invest my time in.  Wish God could've used something else to get my attention, but apparently that's what it took.  And what I'm talking about is being completely sincere, not just a quick love ya, out the door, I'm running late.  Nor does it have to be this drawn out 5 minute, in depth conversation....but we need to slow ourselves down and look at how much we have to be thankful for in our lives.  God being at the top of that list and being able to worship Him freely and know that one day we will meet Him face to face and be reunited with our loved ones who have gone before us.  But while we remain on earth, I would encourage you to pause and just think about what I've shared.  I know life is crazy busy, especially for those of you working and having kiddo running around.  Don't forget about the small stuff.  Personally, it's changed my heart and outlook on life.  I love how God works that way....are you willing to let God work that way in your life?  In your families life?  It could be life changing!  Trust me...it's the little things that can make a huge difference!!!

Thanks for reading my book - God bless!!!!

Sunday, October 2, 2016

One more sleep....

One more sleep and then I will be admitted into Blogett Hospital in GR on the Neurology floor for approximately 7-10 days into their new Headache Clinic with the intention of breaking the cycle of my continuous migraine that I have now had for 2+ years.  This will be done all through medications.  It's not a particular test or procedure.  There is a protocol of medications that they will follow and it will all be based upon how my body reacts.  I will be getting a PICC line first thing tomorrow morning (thank you Lord!), since my veins are so beat up and abused from all the many IV's that I have had over all the years.  The PICC line will be inserted by a Radiologist and that will be my continuous source for IV medications and they will also be able to draw blood from there as well, or at least that is the intention.  My Neurologist has trained the staff and has put this program in place here in GR over the past 10 months that he has been here.  This program is not new to him, but new to GR.  I will be the first patient going through it here in GR.  I truly am blessed with an amazing Neurologist that never gives up and always has another plan and always has compassion and listens to what I have to say.  I'm so very thankful that I got into him as soon as I did, he has a huge wait list now!  He's a wonderful doctor!!!  Thank you Lord for that!!!  And his PA, and staff are all great too.

Anyway, Friday morning I met with him and had all my "pre-admission" stuff done and we talked a bit about what this was all going to "look" like.  He said the medications would more than likely make me very sleepy/groggy and even sedated.  I could also experience hallucinations, so that could make things interesting. So if I post crazy stuff on FB you'll know it's me seeing things on top of having no brain or memory because of the other meds I'm on!!!  At least it will be entertaining....lol!!!


All joking aside, there is a lot riding on this treatment plan.  My Neurologist is very hopeful and optimistic that this will break the cycle.  I will admit I have wavered pretty much daily in regards to this.  I've fought with giving it to God and letting go.  Getting my head and my heart on the same page.  This morning in church I finally laid my fears, my anxiety, my insecurity, my "what if's" at the foot of the cross and put it all in the hands of God, the Great Physician.  Of course it hit my like a ton of bricks during a song (God always seems to speak to me through song).  The song is called "This We Know".  I'm going to add the song in here, and the words as well.  I couldn't even sing the words...we trust you....we trust you....your ways our higher than our own.  The tears were flowing, God was reaching out to me, His child.  I felt Him saying no matter what the out come, trust me.  And then the message was along the same lines....don't fight your battles on your own...trust me!!!!  Keep trusting and leaning on ME!!!  For greater is HE that is in ME than anything that comes my way!!!  Pastor Ken has been taking us through Joshua and discussing battles.  Man, do I feel like I'm smack dab in the middle of a battle!!!  Yup, I sure do!!!  But no matter the battle, no matter how hard and painful the battle is....I am to TRUST God!!!  Keep trusting....Keep leaning!!!!  Words I needed to hear this morning.  Was I in pain sitting there this morning?  Yes.  But God still met me there and spoke to my heart.  I'm trusting God has a plan, I don't know what it is, but I will keep trusting....and keep leaning for I am not facing this battle on my own!!!  Praise God for that!!!!





This We Know - Vertical Church Band

You are who say you are
You’ll do what you say you’ll do
You’ll be who you’ve always been to us Jesus
Our hope is in you alone
Our strength in your mighty name
Our peace in the darkest day remains Jesus


CHORUS
This we know 
We will see the enemy run
This we know
We will see the victory come
We hold on to every promise you ever made

Jesus, you are unfailing


Our God through the wilderness
Our joy through the heaviness
Our way when it seems there is no way
Jesus


BRIDGE
We trust you
We trust you
Your ways are higher than our own