I finally had my appointment with a Neurologist in Holland on Thursday. She was very nice and compassionate, but warned me this is not going to be a quick or easy process. The first step is breaking the cycle of my migraine, since I've had it for a good 90 days and it never goes away, the pain level just changes. My primary care doctor has tried everything, ER's think I'm a drug seeker and I'm beyond frustrated. I don't handle physical pain well, especially when it knocks me down and out.
So, the plan right now is an MRI next week. Heavy steroids and a medication 'cocktail' to try and break the migraine. Then I go back in 2 weeks for follow-up. She said we really can't determine the causes or come up with a good treatment plan until the cycle breaks.
At my appointment she did a nerve block injection in the back of my head and that hurt so bad. It's an injection of a steroid to also help, but all it has done was cause more pain. The site is still very painful, and of course it's also the right side of my head, where all my pain is concentrated.
I ended up in ER per the Neurologist suggestion again Thursday night, as the pain had sky rocketed back to a 10. They did their normal migraine cocktail and mine now includes narcotics, which doesn't thrill my soul but it's the only thing that touches the pain. After 5+ hours in the ER again, they did not admit me after going back and forth with my Neurologist. My ER doc and RN were very frustrated with my Neurologist and I was frustrated because I can't get anyone to take ownership of this and work with me on the pain.
It is just frustrating on my many levels. Not being able to do certain thing because I never know how bad the pain is going to be. I am glad she is doing an MRI, she said that will show her more details than the x-ray and CT Scan that has already been done. Part of me is scared. But we need to get to the bottom of this and deal with whatever comes my way.
Your prayers as God would lead are much appreciated!!!! Thanks :)
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